The APPG on rare, genetic and undiagnosed conditions aims to help ensure that families affected by these conditions have access to the care and support that they need.
What is an APPG?
All Party Parliamentary Groups (APPGs) are informal, cross-party, interest groups of MPs and Peers interested in a particular issue.
APPGs do not have any power to make laws and are not funded by Parliament.There are lots of APPGs, covering many different fields such as health, education, transport, defence, finance, the media, and sports.
What will an APPG on rare, genetic and undiagnosed conditions do?
Increase awareness of rare, genetic and undiagnosed conditions in parliament
Help to ensure that patients and families affected by these conditions have access to appropriate care and support.
Host events for Undiagnosed Children’s Day and launch relevant reports & research
Connect MPs (and Lords) with the issues that matter to their constituents
How can I help?
Write them a letter.
We have a letter template you can use to contact your MP. Feel free to add a paragraph to let them know about your condition or interest area. Click here to download.
As their local constituent, you have the most influence over your local politician.
How can I find out who my MP is?
If you are not sure who your local MP is, or would like to look up their contact details to email them, you can find this online at http://www.parliament.uk/mps-lords-and-offices/mps/
An easy way to contact your MP is through http://www.writetothem.com/
Please let us know if you hear back from your MP as this helps us to identify who has an interest in rare and undiagnosed conditions, which will be helpful for future work.
If you have any questions please contact Emily Muir, Public Affairs Assistant at Genetic Alliance UK: firstname.lastname@example.org or call 020 7704 3141