News & Events

Undiagnosed Genetic Conditions Information Event

Last Reviewed 07/04/2016

When

01/01/0001, 0:00 - 01/01/0001, 0:00

Where

East Wing Room, Centre for Life

Times Square, Newcastle, NE1 4EP

As part of our Undiagnosed Children’s Day celebrations we will be having an information event for parents and carers who have children with undiagnosed genetic conditions.

The event is in partnership with Contact a Family and Centre for Life and will be our third event, this time at Centre for Life in Newcastle.

At the event you will be able to

  • Meet other parent carers of children with undiagnosed genetic conditions
  • Explore why getting a diagnosis can be such a lengthy process and why some children remain undiagnosed
  • Get an update about what’s happening with the DDD study and find out more about the 100,000 Genomes Project
  • Hear SWAN UK members share their experiences of raising a child with an undiagnosed genetic condition
  • Find out more about the support that SWAN UK and Contact and Family can offer.

Speakers include

  • David Bourne, Head of Molecular Genetics
  • Simon Zwolinski, Head of Cytogenics Laboratory
  • Linda Sneddon, Research Nurse

Attendance is free but places are limited so booking is essential.

To book email: northeast.office@cafamily.org.uk or call 0191 213 6300

For more information please email info@undiagnosed.org.uk

 

 

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