News & Events

Undiagnosed Children's Day Friday 29 April 2016

Last Reviewed 10/04/2016

When

29/04/2016, 7:00 - 29/04/2016, 23:00

Where

Nationwide

Undiagnosed Children’s Day is a nationwide event on Friday 29 April to increase awareness of undiagnosed genetic conditions and raise funds to support SWAN UK (syndromes without a name), the only dedicated support available in the UK for families of children with undiagnosed genetic conditions.

Last year fundraisers, schools, families, companies and donations raised an amazing grand total of £18,917! With your help this year we can raise even more, can we make it to£20,000?

This year the money we raise is even more important as our two grants from the National Lottery and the Big Lottery Fund that currently support a large part of SWAN UK’s work both end in April 2016 and it is essential that we make sure we have money in place so that we can keep providing our unique and vital service to families of children with undiagnosed genetic conditions across the UK.

It will also help us to realise our Big Ambition that all families affected by a syndrome without a name get the support they need, when they need it.

Here at SWAN UK we’ve currently got about 2000 members with more making contact every day – we know however there are so many more families out there who need our support so we want to try and double our membership by 2017, your support can help us do this!

So with Undiagnosed Children’s Day 2016 right around the corner, we we have come up with some fun and exciting ways you can get involved. 2015 saw a range of fundraisers participating in fun runs, cake sales, raffles and much more. This year we’re letting our imagination run wild and have come up with even more ways you can get involved –whether it’s as an individual, through your child’s school, or by getting your friends, family or company involved.

You can download our Fundraising Pack by clicking here or emailfundraising@undiagnosed.org.uk and we can post one out to you.

Alternatively why not support us online? Click here to find out more: http://undiagnosed.org.uk/undiagnosed-childrens-day-2016-get-involved-online

 

 

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